Alira Health Partners with LACNETS and the Carcinoid Cancer Foundation to Help NET Cancer Patients Take Control of Their Healthcare Journey

Partnership Empowers Patients with Mobile Platform Providing Critical Patient Support

Framingham, Mass., June 29, 2023 — Alira Health, a global advisory and clinical research firm whose mission is to humanize healthcare and life sciences, announced today the addition of the Learn Advocate Connect Neuroendocrine Tumor Society (LACNETS) to accompany its partnership with the Carcinoid Cancer Foundation (CCF) in supporting those living with NET.

It is an honor for us to join forces with LACNETS and the Carcinoid Cancer Foundation. Together we enable patients to manage their own healthcare journeys through meaningful data that patients themselves own and control."
Jennifer Lannon Director, Patient Engagement and Advocacy, Alira Health

With LACNETS, a patient advocacy organization providing an inclusive global community of support and education for patients with neuroendocrine cancer, joining the partnership to provide support with CCF, the oldest nonprofit carcinoid and related-neuroendocrine-tumor patient advocacy organization in the United States, NET Cancer patients benefit from the powerful collaboration of two advocacy organizations working together with Alira Health’s digital health platform, NET Cancer Health Storylines, empowering patients to take control of their own healthcare journeys.

The mobile patient support platform NET Cancer Health Storylines provides centralized tools for managing NET Cancer in one place, enabling patients to choose what they would like to track to build their own health story, record their symptoms, nutrition, moods, medication and more, gain insights to learn about and manage their health, and share more with their doctor so they both see the full story to inform decisions that will improve care and outcomes.

Key features in the NET Cancer Health Storylines app enable patients to better manage their health: the Medication Tracker helps patients take prescribed medications on schedule, an essential part of overall self-care, by receiving reminders for taking medications on their mobile device; the Food Diary in conjunction with NET Nutrition helps patients record food reactions, learn what foods may be triggering symptoms such as flushing or diarrhea, and choose and prepare the right foods to help address their symptoms; the Symptom Tracker helps patients track prevalence and severity of their symptoms over time; Daily Vitals helps patients monitor vital signs and manage medical issues; the Healthy Doses feature includes inspirational quotes for mind and spirit; the Healing Music Box feature includes soothing music from members of the NET community; the Circle of Support feature enables patients to share their health story with family, caregivers, and doctors; My Journal helps patients record thoughts and life moments; the Tool Library provides additional resources to help patients manage their health. By selecting Sync a Device, patients can connect with their health and fitness devices.

Health Storylines helps patients gain an intimate understanding of their health journey while managing their conditions, enabling over 150,000 patients to be active and informed owners of their healthcare data across more than thirty major therapeutic areas. The Health Storylines app can sync with 300+ mobile health devices to provide an all-in-one self-care experience.

“It is an honor for us to join forces with LACNETS and the Carcinoid Cancer Foundation. Together we enable patients to manage their own healthcare journeys through meaningful data that patients themselves own and control” said Jennifer Lannon, Director of Patient Engagement and Advocacy at Alira Health. “Today, it’s more important than ever to put patients first and give patients and their care-giving circles the ability to map their own healthcare journeys. We believe when patients are informed, respected, and engaged, they make better choices. Better choices mean better health outcomes. As patients gain access to more health and treatment information, they are being equipped to grow as advocates of their own health.”

“We are thrilled to expand our partnership with CCF to Alira Health and the Health Storylines app. We believe the app will give our NET patient and caregiver community another tool to manage their health so they can thrive,” said Kavya Velagapudi, Executive Director of LACNETS.

“We are delighted to expand our partnership with Alira Health with the inclusion of LACNETS as a collaborator working on continued improvements to the Health Storylines app. CCF and LACNETS have recently partnered on our various programs, and it was a natural choice to integrate our work together on the app,”  said Keith Warner, CEO of Carcinoid Cancer Foundation.

The NET Cancer Health Storylines app is available to patients free of charge online through a desktop computer and as a mobile app which can be downloaded from the Google Play and Apple App Store.

About Alira Health

Alira Health is a global advisory and clinical research firm whose mission is to humanize healthcare and life sciences, in partnership with patients, through innovative technologies and expert guidance. From development to medical care, Alira Health complements the expertise of its Pharma, Biotech, and MedTech clients with a full spectrum of services across their entire solutions lifecycle. Alira Health’s digital health platform Health Storylines helps patients gain an intimate understanding of their health journey while managing their conditions. Health Storylines enables over 150,000 patients to be active and informed owners of their healthcare data across more than thirty major therapeutic areas.

About the Learn Advocate Connect Neuroendocrine Tumor Society (LACNETS)

The Learn Advocate Connect Neuroendocrine Tumor Society (LACNETS) is a patient advocacy organization providing a community of support and education for patients (those with neuroendocrine cancer) and to advocate for all people impacted by this uncommon disease by expanding awareness and by voicing the patient’s perspective in collaborative dialogue with healthcare professionals. The LACNETS community is both local and global. The community includes patients, family members and caregivers who attend monthly educational webinars, virtual support groups, and the annual virtual conference. Learn more: www.lacnets.org

About the Carcinoid Cancer Foundation (CCF)

The Carcinoid Cancer Foundation is the oldest nonprofit carcinoid and related neuroendocrine tumor organization in the United States, founded in 1968. The mission of the foundation is to raise awareness and educate the general public, patients, and the healthcare community about these rare diseases; to support NET cancer patients and their loved ones; and to serve as patient advocates. Learn more: www.carcinoid.org

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