Alira Health

Alira Health

MGFA National Patient Conference 2024

April 28-30, 2024 | Tampa, FL, USA

We are excited to join 2024 MGFA National Patient Conference, the largest and most complete gathering of the MG Community. We will attend alongside our partner the Myasthenia Gravis Foundation of America (MGFA), the largest, leading patient advocacy organization solely dedicated to finding a cure for MG while improving the lives of people living with the disease.

Together, in 2023 we introduced the MGFA Global MG Patient Registry 2.0. Hosted on our flagship patient health platform, Health Storylines™, it provides a registry that enables patients to directly help organizations make new MG discoveries that could lead to better treatments and improve patients’ quality of life.

Meet our representative Renee Willmon, Senior Director, Real World Solutions, on-site or connect with her online if you have questions about MGFA Global MG Patient Registry 2.0. Renee will also join the panel “Elevating the Patient Voice in Research and the MGFA Global Patient Registry” as a member of MGFA Registry Advisory Council.

Meet Our Speaker and Delegate
Renee Willmon

Renee Willmon

Senior Director, Real World Solutions As a specialist in patient journey data, Renee has been an innovator in the application of digital tools to engage patients, collect data that is fit for purpose, and represent patients’ lived experience in real time. Through her experience as a forensic anthropologist, she brings a unique perspective to real-world evidence that results in an enhanced ability to balance the priorities in clinical trials, including the needs of patients, sponsors, and regulators. Renee completed her graduate studies in anthropology at the University of Toronto, University of Western Ontario (London, Canada) and Ecole Pratique des Hautes Etudes (France).
Learn More About MGFA Global MG Patient Registry 2.0
Myasthenia Gravis MG Patient Registry
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