TerSera Therapeutics to sponsor “NET Cancer Health Storylines” by Alira Health and Carcinoid Cancer Foundation to support patients suffering from Carcinoid Syndrome Diarrhea
We are pleased to announce TerSera Therapeutics’ sponsorship with the Carcinoid Cancer Foundation (CCF) and Alira Health to expand and optimize a holistic patient journey digital platform for patients with Neuroendocrine Tumors and Carcinoid Syndrome.
To support patients in coping with the impact NETs have on their quality of life and collaborate with their care team on treatment decisions, Alira Health and the Carcinoid Cancer Foundation have collaborated since 2015 to build “NET Cancer Health Storylines,” a customized version of the Health Storylines™ app that makes it easy for patients to record their symptoms, nutritional concerns, moods, medication and more. The NET Health Storylines app provides patients with resources developed by NET experts. Specific tools include a Stool Diary, NET Nutrition tool, Medication tracker, and additional educational resources. The app is available for download at the NET Cancer Health Storylines website or through the Apple App Store or Google Play.
“We are grateful for this support from TerSera to continue to enhance the NET Health Storylines platform to distribute meaningful educational content to NETs patients. The resources available through this platform are important tools in supporting NET patients throughout their journey,” said Keith Warner, Chief Executive Officer of the Carcinoid Cancer Foundation.
“Collaborating with CCF and the NET Cancer Health Storylines platform is a fantastic opportunity for us to support patients with Carcinoid Syndrome Diarrhea beyond our existing clinical nurse educator program. We are also looking forward to learning from patients how we can continue to support them better on their journey,” said Pamela Gaytan, Executive Director, Clinical Nurse Educators and Patient Advocacy of TerSera Therapeutics.
“This patient support program is a powerful collaboration between TerSera Therapeutics, Carcinoid Cancer Foundation, and Alira Health. We are excited for Health Storylines to power this high-touch, high-tech, and high-science support for patients with NET Cancer and Carcinoid Syndrome,” adds Jennifer Lannon, Director, Partnerships & Business Development, Patient Advocacy of Alira Health.
About Alira Health
Alira Health is a global advisory and clinical research firm whose mission is to humanize healthcare and life sciences, in partnership with patients, through innovative technologies and expert guidance. From development to medical care, Alira Health complements the expertise of its Pharma, Biotech, and MedTech clients with a full spectrum of services across their entire solutions lifecycle.
About TerSera Therapeutics
TerSera Therapeutics acquires, develops, and markets specialty pharmaceutical products with a focus on oncology and non-opioid pain. Its mission is to provide products which truly make a difference for patients. For more information about TerSera Therapeutics, please visit www.tersera.com.
About Carcinoid Cancer Foundation
The Carcinoid Cancer Foundation is the oldest nonprofit carcinoid and neuroendocrine cancer organization in the United States, founded in 1968. The mission of the foundation is to increase awareness and educate the general public and healthcare professionals regarding neuroendocrine tumors (NETs), to support NET cancer patients and their families, and to serve as patient advocates. Visit the CCF website for more information, www.carcinoid.org.
Alira Health Joins EMIG to Advance Market Access in the UK
Today’s Digital Health Solutions Landscape
Alira Health CEO Gabriele Brambilla Interviewed by Investment Reports
Renee Willmon and MG Registry featured in new Rare Disease Article Series
The MedTech World Podcast: Interview with Gabriele Brambilla
MGFA National Patient Conference 2023
WIRED Health 2023
Subscribe to our newsletter for the latest news, events, and thought leadership