World Orphan Drug Congress Europe

October 30 - November 2, 2023 | Barcelona, Spain

We are excited to announce that we will sponsor and speak at World Orphan Drug Congress Europe. This event is recognised as the largest and most established multi-stakeholder rare disease meeting.

During the second day of the event, we will host the round table “Patient Engagement in Clinical in Rare Disease” moderated by our Associate Director of Patient Engagement Giulia Pierini, alongside prominent industry experts.

Join the round table and don’t miss the opportunity to find us at our booth and learn how we can help you along the journey of rare disease drug development, market access, and commercialization.

Events
Published on:
August 3, 2023

About Our Round Table

“Patient Engagement in Clinical in Rare Disease”

11:30 | October 31st

Speakers
Giulia Pierini

Giulia Pierini

Associate Director of Patient Engagement at Alira Health
Tania Nadal

Tània Nadal Boeufvé

Clinical Development Director at Ferrer International
Begonya Nafria Escalera

Begonya Nafria Escalera

Patient Engagement in Research Coordinator at Sant Joan de Déu Children’s Hospital
Our Speaker
Giulia Pierini

 Giulia Pierini 

 

Associate Director, Patient Engagement  Giulia is specialized in converting patient insights, perspectives, and unmet needs into strategic outputs for companies. Since 2018, she has been a consultant for the pharmaceutical and medical device industry, working on over 50 strategic projects across several therapeutic. Prior to her consulting work, Giulia spent four years in marketing and sales for big Pharma, and two years as a researcher.  
Meet Our Delegates
Annabel de Maria

Annabel de Maria

Chief Patient Officer
Giulia Pierini

Giulia Pierini

Associate Director, Patient Engagement
Nerea Blanque Catalina

Nerea Blanque Catalina

Managing Partner, Consulting Affiliates
Jonatan Rapaport Headshot

Jonatan Rapaport

Business Development Manager
Mathieu Rose

Mathieu Rosé

Director, Real World Evidence
Joris Pezzini

Joris Pezzini

EVP, Biopharma
Luca Trentin

Luca Trentin

Senior Consultant, Patient Engagement
Nuria Rodriguez Garcia, market access and pricing expert

Nuria Rodriguez Garcia

Partner, Global Market Access and Pricing
Ahmad Bechara

Ahmad Bechara

Managing Partner, Global Pricing and Market Access
Welcome to Alira Health. This site is best viewed in Chrome, Microsoft Edge, or Firefox.