World Orphan Drug Congress Europe

October 30 - November 2, 2023 | Barcelona, Spain

We are excited to announce that we will sponsor and speak at World Orphan Drug Congress Europe. This event is recognised as the largest and most established multi-stakeholder rare disease meeting.

During the second day of the event, we will host the round table “Patient Engagement in Clinical in Rare Diseases” moderated by our Associate Director of Patient Engagement Giulia Pierini, alongside prominent industry experts.

Join the round table and don’t miss the opportunity to find us at our booth and learn how we can help you along the journey of rare disease drug development, market access, and commercialization.

Events
Published on:
August 3, 2023

About Our Round Table

“Patient Engagement in Clinical in Rare Diseases”

11:30 | October 31st

Speakers
Giulia Pierini

Giulia Pierini

Principal, Patient Engagement at Alira Health
Tania Nadal

Tània Nadal Boeufvé

Clinical Development Director at Ferrer International
Begonya Nafria Escalera

Begoña Nafría Escalera

Patient Engagement in Research Coordinator at Sant Joan de Déu Children’s Hospital
About Our Speaker

Giulia Pierini is specialized in converting patient insights, perspectives, and unmet needs into strategic outputs for companies. Since 2018, she has been a consultant for the pharmaceutical and medical device industry, working on over 50 strategic projects across several therapeutic. Prior to her consulting work, Giulia spent four years in marketing and sales for big Pharma, and two years as a researcher.

Meet Our Delegates
Annabel de Maria

Annabel de Maria

Chief Patient Officer
Nerea Blanque Catalina

Nerea Blanque Catalina

Managing Partner, Consulting Affiliates
Chus Castillo

Chus Castillo

Partner, Consulting Iberia
Jonatan Rapaport Headshot

Jonatan Rapaport

Business Development Manager
Mathieu Rose

Mathieu Rosé

Director, Real World Evidence
Joris Pezzini

Joris Pezzini

EVP, Biopharma
Luca Trentin

Luca Trentin

Senior Consultant, Patient Engagement
Nuria Rodriguez Garcia, market access and pricing expert

Nuria Rodriguez Garcia

Partner, Global Market Access and Pricing
Ahmad Bechara

Ahmad Bechara

Managing Partner, Global Pricing and Market Access

Marc Manau

Associate Director, Global Market Access
Irene Lizano

Irene Lizano

Associate Director, Global Market Access
Ilda Theka

Ilda Theka

Senior Consultant, Market Access
Welcome to Alira Health. This site is best viewed in Chrome, Microsoft Edge, or Firefox.