Global Payer Forum Data Protection Notice

Personal Data will be processed lawfully, fairly and in a transparent manner; will be collected for specified, explicit and legitimate purposes and processed in a manner that is not incompatible with such purposes; they will be adequate, relevant and limited to what is necessary in relation to the purposes for which they are processed, accurate and up-to-date; they will be processed with the utmost confidentiality, mainly with electronic and automated means, and stored both electronically and on paper, and on any other type of suitable means, in accordance with the principles of Privacy laws and, in any case, in such a way as to ensure adequate level of security, including protection, with adequate technical and organizational measures, from non-authorized or unlawful processing, or even accidental loss. Data will be stored in a manner that permit the identification of the data subjects for the extent strictly necessary to the achievement of the purposes for which they were processed. Alira Health, as defined below, undertakes the responsibility to observe specific security measures in order to prevent data loss, illegitimate or unfair use and unauthorized access, in full compliance with statutory and regulatory provisions. The Personal Data voluntarily provided by yourself will be stored in Alira Health database exclusively for the purposes specified below and for a limited time or for the time required by the relevant legislation.

Identity and Contact Details of the Data Controller

For the purposes of this Notice, Alira Health, as defined below, is the data controller. Alira Health Group and related entities separately or together are referred to as “Alira Health”. Alira Health Boston LLC, main operational entity in USA is located at 1 Grant Street, Suite 400, Framingham MA 01702, Alira Health SAS, parent company for European entities is located at 55 rue La Boétie, 1er étage, 75008 PARIS. Alira Health companies have signed an agreement as Joint Controllers available for your consultation, on request. The Academic Partners of the Webinar University Pompeu Fabra (UPF) and the University College of London (UCL) (together “Academic Partners”) and Takeda Pharmaceuticals U.S.A., Inc. which promoted the Webinar (“Promoter”) will also be individual data controller for the publication of the webinar in their channels. You can have further information regarding how Academic Partners and Takeda process your data at the following links:

Contact Details of the Data Protection Officer/Privacy Officer

In accordance with the Privacy laws, Alira has appointed a Data Protection Officer (DPO) and a Privacy officer. For the purposes of exercising the rights provided by the State or country you are located and for any request relating to your personal data, you may contact Alira’s DPO by sending a communication to the following e-mail address: [email protected] You can exercise of your rights, listed for your convenience as follows: North America:

Access – to confirm whether we process your Data and how.
Deletion – to request we delete Consumer Health Data about you.
Correction/rectification – to request correction of inaccurate data.
Withdrawal of Consent – to withdraw consent for processing (where applicable).
Opt-Out of Sale/Sharing – to opt out if data would be considered a “sale” or “share” under state law.
Appeal – to appeal if we deny your request, in USA.

Europe and Global:

Right to be forgotten. To obtain the deletion of your personal data under certain specified circumstances.
Restrict processing. You have the right to restrict processing of data under certain specified circumstances.
Data portability. You have the right to request for the receipt or the transfer to another organization, in a machine-readable form, of your personal data.
Object to processing. You have the right to object, on grounds relating to your particular situation, at any time to the processing of your data.
Right to withdraw consent. When you have given your explicit consent for the processing of your data, you can withdraw it at any time without any cost nor justification.

What Data Do We Process?

General information collected: surname, first name, company and industry in which organization operates, job title, business e-mail address, country/region of residence.

How and Why Do We Use this Information?

Organize your participation in the Event: allow you to register for the event, confirm your registration, communicate about the organization of the event, check that you participated at the event, send information about future editions of the same event.

External communication about the Event: Alira Health and its Affiliates, may use the feedback you decide to provide for promotional purposes but will be anonymised,

Provision of the recordings to entities that helped organising the event and to speakers for promotion of the event and educational purposes, for a limited time, after the Event

If you agree, we may also use your personal data for:

Marketing purposes (namely sending our relevant publications, advertising material, market research, newsletters, and commercial communication)

As a general rule, you can always withdraw your consent, opt-out of or unsubscribe from marketing communications.

Why Do We Use Your Personal Data?

We process your data in order to organize your participation in the Event. The legal basis for the processing of your data is:

The contractual obligation of Alira Health, in the context of your registration for the Event. If you do not provide us with the necessary data in this context, it will not be possible to properly manage your registration for the Event.

In order to externally communicate about the Event using your feedback without your name nor your company (but your role may be mentioned), legitimate interest.

Since you participate in the Online Event, we draw your attention to the fact that your camera is turned off by default and that, if you turn it on, you may appear as part of the recording of presentations. If you do not wish to appear on the recording, please keep your camera off. However, if you turn on your camera or you speak during the webinar, you change the initial settings set by default, which means that you perform a clear positive action by which you understand and accept that your face and your voice may appear on the recording that will be provided to the participants. With regard to promotional activity, Alira, hereby informs that the personal data you voluntarily provide will be processed for the following purposes, with your consent:

Marketing Activities (sending of our relevant publications, advertising material, market research, commercial communication);
Marketing Activities related to the topic of the event, legitimate interest.

Data processing for marketing purposes, except for activities related to the topic of the event you attended, will only apply if you consent. And consent withdrawal is always possible under request. Following this information notice the consent for promotional activity can be accorded. The refusal to give consent for promotional activities will not prevent from the participation to the webinar.

Data Sharing – Recipients or Categories of Recipients of Personal Data

We do not sell, trade or transfer your personal data to third parties. Recordings of presentations made during the event will be provided to participants for a limited period after the event. Third parties involved in the webinar which will process personal data for the aforementioned purposes are entitled to process such data and will act in accordance with the principles of Privacy laws. Personal data acquired by Alira Health for the registration to the webinar are not subject to dissemination. These data may be communicated within the Alira Health group and be known by the persons tasked with data processing in accordance with the principles of the Privacy Laws. For the purposes of maintenance of its website, Alira Health may use third parties, who therefore may have access to your data. However, these individuals will be appointed as vendors or authorized persons tasked with data processing, and will receive adequate operating instructions, particularly in relation to the adoption of minimum security measures. Your personal data may be processed internally and by the platforms Zapier, GoToWebinar and Zoho (website host and payment provider). For more information on the data processing carried out by such platforms, you can consult the privacy notice available on their website at https://www.zoho.com/privacy.html ; Zapier: https://zapier.com/legal/data-privacy; GoToWebinar: https://www.goto.com/company/legal/privacy The recording of the Webinar will be made available in channels such as websites, business presentations, advertising material (brochures, advertisements) and social media (e.g. LinkedIn or other platforms) (“Channels”) for educational and promotional purposes.

How Long Do We Keep Your Information?

Alira Health will keep your personal data for a period not exceeding that necessary for the aforementioned purposes and in any case, no more than 3 years after the end of the event and in any case until the data subject withdraws the consent to data processing when applicable.

Transfer of Personal Data to Third Countries

Data processing may be carried out in a Member State of the European Union (EU), in a Member State of the European Economic Area (EEA) or in a Third Country. For the purposes specified, Alira Health uses the platform:

Zoho CRM
GoToWebinar
Zapier

More information available at the links above.

Mandatory or Optional Nature of Data Communication

The communication of your personal data is a contractual requirement. The refusal to communicate them will prevent Alira to register you to participate to the webinar. For purposes that rely on your consent, the provision of your personal data is optional. The refusal to communicate them will not prevent you to participate to the webinar.

Existence of an Automated Decision-Making Process

Alira Health does not use any automated decision-making process.

How Do We Protect Your Information?

Alira Health treats your personal data confidentially and uses at least the same level of care in safeguarding your personal data as used with its own confidential information of a similar nature. Your personal data is stored on secure systems and is only accessible by a limited number of people with special access rights and who are bound by confidentiality obligations.

Marketing Permissions

If you agree, Alira Health will use the information you provide on this form to be in touch with you and to provide updates and marketing communications. You can change your mind at any time by clicking the unsubscribe link in the footer of any email you receive from us, or by contacting us at [email protected]. We will treat your information with respect. For more information about our privacy practices please visit our website. By clicking below, you agree that we may process your information in accordance with these terms. We use Zoho as our marketing platform. By clicking below to subscribe, you acknowledge that your information will be transferred to Zoho for processing. Learn more about Zoho’s privacy practices here.

E-mail Choices

If you have subscribed to our e-mail list and wish at any point to stop receiving commercial e-mails from us, simply follow the opt-out instructions that are included in each e-mail. If you have any questions relating to your choice to “opt-out” at any time, please Contact Us at the e-mail address [email protected].

Links to Other Sites

Our Service may contain links to other sites that are not operated by us. If you click on a third party link, you will be directed to that third party’s site. We strongly advise you to review the Privacy Policy of every site you visit. We have no control over and assume no responsibility for the content, privacy policies or practices of any third-party sites or services.

Children’s Privacy

Our Service does not address anyone under the age of 18 (“Children”).