Alira Health

Alira Health

Gather Unique Insights and Accelerate Solutions for Lupus Patients with the Lupus Registry

Access the real-life health experience of Lupus patients to advance research, improve patient outcomes, and make better clinical decisions

Lupus is a complex disease with diverse manifestation, limited treatment options and inequitable impact on the affected population. This makes research of patient experience, treatment patterns, and long-term clinical outcomes particularly challenging.

We partnered with FORWARD to help you overcome these hurdles. FORWARD, the National Databank for Rheumatic Diseases, is the largest patient-reported research databank for rheumatic disorders in the US.

Together with FORWARD, we unlock the value of data from thousands of US Lupus patients to improve the understanding of the patient and caregiver experience and needs.

Lupus Registry

About the Lupus Registry

The registry data serves as a valuable resource to unlock insights and accelerate research in Lupus. Comprehensive, de-identified, and complete clinical and patient-experience data at your fingertips — thanks to the collaboration between Alira Health and FORWARD.
6,000+ lupus patients have participated in at least one survey
3,067 patients with a self-reported or MD confirmed SLE diagnosis
2,033 patients with MD-confirmed SLE diagnosis
1,057 SLE patients currently engaged

Why the Lupus Registry by FORWARD and Alira Health?

 

Contact us to learn how we can support you

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