Patient Engagement

Amplifying Patient Voices

Engagement across the lifecycle

Opportunities for patient partnership exist at every stage of the development lifecycle. Understanding where, and how, to engage clients and action their insights will improve outcomes, and patient satisfaction.

Research Priorities

  • Priority-setting​​
  • Fundraising, budget allocation

Research Design and Planning

  • Early-phase protocol synopsis​
  • Engagement stages
  • Practical clinical insights​
  • Informed consent design and review​

Research Conduct & Operatons

  • Trial design, outcome selection​
  • Trial committees
  • Investigators’ meetings​

Evaluation and Dissemination

  • Regulatory advice​
  • Study reporting, life-impact description​
  • Public info review
  • Experts’ meetings​
  • Early access request​

HTA and Pharmacovigilance

  • Patient perspective
    on P&R decision​

Pre-launch

  • Patient-journey insights
  • Patient-flow structuring at PoC
  • Mobilization programs​
  • Emotional insights​

Post-Launch

  • /Patient support​
    adherence programs​

Member of EURORDIS

Alira Health is a proud member of EURORDIS’ European Roundtable of Companies (ERTC). We share their mission of raising awareness with the public and policy-makers about rare diseases and their impact on patients’ lives.

 

Working together to transform healthcare

Developing a lifecycle of patient engagement benefits patients and provides organizations with impactful insights and measurable results to their business.
Contact us
Annabel de Maria
Annabel de Maria
Vice President, Patient Engagement
Elevating patient voices is key to transforming healthcare. We connect clients and patients, creating actionable insights that serve stakeholders and highlight patient concerns and values.

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